Are you a parent, caregiver, or young person with experience of paediatric low-grade glioma (pLGG) in Australia?
As part of a Monash University Honours research project, in collaboration with Ipsen Pharmaceuticals*, we’re developing a Patient Journey Map (PJM) to capture the real-life experiences of Australian families affected by pLGG—from diagnosis to treatment, follow-up, and beyond.
Why Your Voice Matters
There is currently very little Australian research that captures what it’s really like to navigate pLGG care. Your insights can help: Improve how health services communicate and coordinate care Highlight gaps in diagnosis, treatment, and survivorship support Empower advocacy with real-world, lived experience evidence Support health policy and funding for better access to new therapies Your contribution will help make this map a powerful tool for health professionals, decision-makers, and advocacy groups to better support future families.
See full Project Information on THIS PDF
Register your interest HERE
