Related Links

Gliolan

GLIOLAN® (aminolevulinic acid hydrochloride) is an orally administered drug used for the visualisation of certain brain tumours (particularly glioblastoma multiforme) during tumour surgery.

Gliolan® FAQ

Avastin

Avastin is still waiting for a definitive PBS decision on recent applications to the Federal Government. BTAA will update this information once it is available.

Selected useful web resources

  • Health Direct (a FREE* 24-hour telephone health advice line staffed by Registered Nurses to provide expert health advice. BTAA has not yet evaluated the nurses' level of knowledge about brain tumour-specific health challenges).
  • Brain Tumour Healing Program  Canadian website ( Finding Light in the Darkness: Reclaiming Wholeness after a Brain Tumour, A "Skills for Healing" retreat documentary) 

International BT organisations  

Brain tumour research organisations

Australian Brain Tumour related consumer groups 

General Cancer Groups

Brain Tumour Health Professionals

BTAA is developing a register of Australasian professionals with a professed interested in brain tumour treatment.

We offer no rating as to who might have more experience or knowledge from among these specialists but we do encourage patients and caregivers to ask their initial specialist extensively about their interest and experience in the area that is relevant for your care. It is also important to remember that you have a right to a second opinion.

Developing a list of specialists is a very difficult task because many of the oncologists, for example, do not specialise solely in brain tumours but work in other cancer fields and many of the neurosurgeons undertake other neurosurgery apart from craniotomies for brain tumours.

A list of Royal Australasian College of Surgeons is available here.

Search for a medical oncologist here

Health Complaints Commissioners

Any complaints about the medical service you receive should be directed to your local health complaints commissioner.

Links to the websites for health care complaints commissioners in Australia and New Zealand are available here:

beyondblue Directory of Medical and Allied Health Practitioners in Mental Health

Click here to access this directory. Depression can be a problem associated with any serious illness. Please note the disclaimer on the BeyondBlue website.

Last Update 29 April 2019

Email enquiries@btaa.org.au for suggestions to update this list and to let us know about new resources.