Welcome to our organisation
Brain Tumour Alliance Australia (BTAA) is the only national brain tumour patient and caregiver organisation in Australia.
It was established in late 2008 by a group of brain tumour patients and current and former caregivers.
While welcoming the advice and input of specialists, BTAA seeks to represent the brain tumour community from the viewpoint of the patient, family and caregiver.
FREE HANDBOOK ... FREE HANDBOOK ... FREE HANDBOOK
 |
A free copy of the 76-page
US-produced "Primer of
Brain Tumors" (9th edition - 2010), with a special insert
linking various sections to Australian conditions, is available from
BTAA. Please click here to go to a request form or phone the FREECALL number: 1800 857 221 Note: Only one copy is available per Australian-resident brain tumour patient or family. |
| Are you looking for information about international or Australian brain tumour support groups? If so, then click here. |
| Important: Are you a brain tumour patient who is about to undergo an operation for a suspected primary malignant Grade III or Grade IV (glioblastoma) tumour? If so, you should read this FAQ about Gliolan. |
Donate to
Brain
Tumour Alliance Australia Inc:
Account name: Brain Tumour Alliance Australia. Commonwealth Bank. BSB:
06 2900. Account Number: 10603153. When making a transfer please also send an email to secretary@btaa.org.au notifying us of the transfer and your name and address. Sometimes the Bank information can be rather obscure.
BTAA has been endorsed by the Australian Taxation Office as a Deductible Gift Recipient. ABN 97 733 801 179. Click here to download the relevant paperwork from the ATO.
 |
 BTAA had a display at the Brain Cancer Forum held in Sydney in May 2011. BTAA Chair Matt Pitt attended a similar meeting in Brisbane the day before. |
 The principal guest speaker Dr David A Reardon (USA) stopped by to talk to BTAA officials at the Sydney Forum. |
 Brain tumour survivors Sarah Mamalai and Bronwyn Cozens at the BTAA AGM 2010 read an article featuring how Bronwyn and her pet dog Lizzy-bette both had brain tumours at the same time. |
Latest news
28 January 2012: BTAA, in conjunction with the Sydney Neuro Oncology Group, is holding a free Brain Tumour Forum for patients, families and carers, at the Kolling Institute Auditorium, North Shore Hospital Campus, St Leonards, Sydney, between 4 p.m. and 8.15 p.m. on Thursday 8 March 2012. The Forum will commence with small group sharing meetings followed by free refreshments (courtesy NSPH) and a series of presentations. The principal guest will be Professor Martin van den Bent from the Netherlands and this will be the only opportunty during his Australian visit for patients and carers to meet and hear him speak. On-line registration form to be advised soon.21 January 2012: The BTAA national committee met to discuss an agenda of over thirty items and set in train a number of important projects. Here is a photo of the meeting:
L-R: Mark, Matt, Kelly, MaryAnne, Susan. Denis, Catherine.
16 December 2011: The December 2011
BTAA E News is available here.
12 November 2011: BTAA has
uploaded a new resource
entitled "Fitness to drive for brain tumour patients - a personal
experience". Please advise us of other subjects you would like to see
covered by BTAA.
25 October 2011:
The Australian Pituitary Foundation has organised a seminar at RPA
Hospital (Sydney) on 29 October. For any enquiries please contact
Sue Kozij on 1300 331 807 or email support@pituitary.asn.au
15 October 2011: The Awareness
Week and the "Hat for a day for BTAA" project (download a poster and guideline).
There are activities also in Adelaide, Melbourne and Perth. Download a
letter to BTAA contacts here.
September 2011: The Spring
issue of the BTAA E News is available here.
August 2011: The Senate
Finance and Public Administration References Committee has reported on
its examination of the Government decision to defer approval of new
drug subsidisation recommendations from the PBAC. The report is
available here.
Matt Pitt, Denis Strangman and Renee Hindson represented BTAA before
the Committee.
19 June 2011: BTAA Winter 2011
E-News has been uploaded here.
10 May 2011: BTAA has
researched and uploaded an updated version of a one-page "Facts
About Brain Tumours" document, which can be downlopaded as a Word
document from here
and as a PDF file from here.
31 January 2011: BTAA has
called on the Federal Treasurer to support braintumour care coordinators in this
year's Budget. Click here
for a media release and here
for a 26 page report of a survey on the subject and click here for
a copy of the formal submission to the Treasurer.
BTAA responds to
PBAC decision not to approve Avastin for recurrent glioma.
GLIOLAN alert:. BTAA
Secretary Denis Strangman was interviewed on ABC
Radio about Gliolan - the new therapy to guide neurosurgeons
towards a greater resection of a brain tumour.
Fact
Sheet about depression and brain tumours launched.
The national anti-depression group Beyond
Blue and Brain Tumour Alliance Australia have co-released a Fact Sheet
on the above subject. Go to: http://www.beyondblue.org.au/
index.aspx?link_id=7.980&tmp=
FileDownload&fid=1875