In April 2016, the BTAA received funding from Cancer Australia for a three-year project to ‘create information resources to help brain tumour patients improve the health and quality of life outcomes for people from culturally linguistically and diverse communities, including Arabic, Greek, Chinese, Vietnamese and Easy English’.
We will be seeking input from our members, and from brain tumour patients, families and caregivers over the coming months to identify what information resources are most needed by people with tumours from culturally and linguistically diverse (CALD) communities.
The BTAA CA Project Steering Committee will hold its first one-day meeting on 2 August 2016 in Melbourne. Its second meeting will be held on 11 September 2016 in Sydney.
The members of the Steering Committee are: Dr Danette Langbecker (U Qld), Dianne Legge (Austin Melbourne), Sally Payne (IBTA Sydney), and Dr Jonathon Parkinson (UNSW Sydney).
Members of the Project Team are: Tricia Berman, Susan Pitt, Janet Micallef, Rigoula Roussakis, Philip Steel and Annabelle Wilson (representing Cure Brain Cancer Foundation). We are in the process of identifying community liaison/multicultural members of the project team.
The first meeting of the Steering Committee and Project Team on 2 August in Melbourne identified a pathway forward for the BTAA project. The Chair of the Chinese Cancer Society of Victoria and a representative of Breast Cancer Australia Network contributed to the meeting. The meeting decided to hold four Focus Group meetings – two with patients and two with allied health professionals – over the next two months to obtain feedback on resources to assist brain tumour patients in CALD communities to obtain understand what is available for support and how to get assistance immediately after diagnosis. The initial four Focus Groups will be held in Melbourne, Sydney and Brisbane.
The 4th National BTAA Summit (14 September 2016) will include a session on the progress of the CA project. See the BTAA Events page.
See Tricia's June 2016 Progress Report. (pdf) here.