Julia Robertson was diagnosed with an
atypical colloid cyst
Thanks for sharing your story Julia - a new BTAA member.
Julia writes: "I was diagnosed in 2003 at the aged of 29. Our children were still very
young my twin step daughters were 13, the eldest son was 9 and the youngest son
was 6. The tumour was located in the third ventricle the middle of the brain
and a part of the brain's CSF system. I
was very symptomatic for 8 years. I finally found a doctor in Sydney who performed my surgery in February 2011.
By this time half of my
brain had shifted and was asymmetrical from intermittent hydrocephalus caused
by the tumour blocking and unblocking the CSF
flow for 8 years. I had an endoscopic resection of the tumour and was out of
the hospital the following morning.
I started studying
at 17 months post op (yes I counted) and achieved a Dual certificate III in
Business and Business Administration in just over 5 months.
Five months after that (just under 3 years post op) I
started a certificate IV in Adult Tertiary Preparation it was a year long
course which I completed with honours.
That launched me into a Bachelor of
Science (Clinical Science). So far I have scored credits and distinctions. I
have had to take a half year off as my father passed away and it has had a
tremendous impact on me. While I have been off I have completed
some other online courses:
Bad brain: Parkinson’s - University of Birmingham
Integrity - University of Auckland
play - University of Sheffield
science – understanding experiments – Open University
and mental health - University of Liverpool
of medicines – Monash University
cancer - University of Bath
adherence – Kings College London
science: Understanding numbers – Open University
bad brain: Basics U OF Birmingham
the 21st century - U OF Glasgow
I went to the Bio med conference in
Melbourne in November 2014 last year and I am heading to the Cancer Council QLD Brain Tumour Consumer Forum (7 February 2015). Apart from that I have been raising a
money for brain tumour research doing fun runs and things since 13 months post
I have raised funds at the following runs:
The Cure Cancer Australia Foundation at the Twilight
Running Festival 2012 and 2014
The Brain Foundation at
the Brisbane Running Festival 2012
The Kim Walters foundation at
the Rotary Fun Run 2012
My largest fund raiser was for the Cure Brain Cancer Foundation
through a head shave and paint and making paper cranes
I suggested Cure for Life Foundation
submit a (successful) proposal for the Sydney Colo(u)r Run 2013. I flew from Brisbane to Sydney
with my husband on our wedding anniversary to volunteer with the Cure for Life
Foundation stall at the Colour run in 2013
volunteered to collect and deliver 100 framed photographic prints to the
Charles Wanstall Apex Lodge and additional 58 framed prints for Cancer Council
Lodges in Townsville and Rockhampton. I collected, printed and framed the
158 images and prints from around Australia and the World through requests on
social networking sites.
I have been a part of the BTSM (brain tumour social media) and Brain Tumor Thursday hash tag posts on Twitter. I make a blog post each moth (or more frequently)
about my recovery and the things I have learnt along the way. (See my blog here).
I will be 4 years post op next month
and am now 41 years old!"
Thanks Julia for your great story, for all your efforts raising awareness and funds, and for becoming a member of BTAA. Keep up the good work.
You can read more about joining BTAA as a member here
You can register for the Queensland Cancer Council Brain Tumour Forum on 7 February 2015 here.
Read more about the QLD Cancer Council Brain Tumour Support Services here.
Read more about other Brain Tumour Support Services here.