BRAIN
TUMOUR WEBSITE AND OTHER LINKS
Support
or advocacy groups:
The IBTA maintains an extensive worldwide listing
of patient groups here. Other groups of interest are
available here.
We are endeavouring to
identify groups and contacts within
Australia.
If you know of any not listed here please contact: secretary@btaa.org.au
Victoria: Carolyn
Gilpin of BrainLink Services Ltd
(Melbourne) (www.brainlink.org.au) advised in
December 2008: “We
provide resources & information about services to people with
Acquired
Brain Injury, including people with brain tumours. We also
keep a list of
the (very few) support groups in Victoria,
including our group in Blackburn
for people
with primary malignant tumours. We also hope to start another group
next year,
for people with benign tumours. Carolyn Gilpin, Information
& Administration
Officer 03 9845 2952 BrainLink Services Ltd "Reducing
incidence & impact of brain disorders in our community" The
Nerve
Centre 54 Railway Road Blackburn VIC 3130
Freecall: 1800 677 579 Fax: 03) 9845 2882 admin@brainlink.org.au
There is
also a group at the Alfred Hospital, contact Helen Mott on 03 9276 3369. Sue Oldfield runs the brain tumour support group at Austin Health:
Sue Oldfield, Cancer Services - Wellness Program, Austin Health, Level
8, Harold Stokes Building, PO Box 5555, Heidelberg VIC 3084
Western Australia:
Brain Tumour Association Western Australia. Contact John Carey 0400 450 399
South Australia:
Adult Brain Cancer Support Association. Contact Linda Aitken linda.aitken@health.sa.gov.au
Queensland: Brain
Tumour Support Service. Contact Sarah Thompson, Cancer
Support
Coordinator, Group Programs, Cancer Council Queensland, 553
Gregory Terrace, Fortitude Valley QLD
4006,
or write to: Brain Tumour Support Service, Cancer Council Queensland,
PO Box 201, Spring Hill Qld 4004 Or Call Cancer Council Helpline on 13 11 20 (toll free) Monday to
Friday, 8am to 8pm.
NSW: Liverpool
Hospital. Contact Kylie Wright or Teresa Simpson. Kylie
Wright, Neurosurgical CNC/Nurse Case Manager, Liverpool
Health Service,
Neurosurgery
Department,
Level
1 Clinical Building,
Locked
bag 7103, Liverpool BC,
NSW 1871, Telephone: (02)
98284078 (direct),
Pager:
98283000 No.
49455, Fax: 98284305 E-mail:
kyliem.wright@swsahs.nsw.gov.au Teresa Simpson,
Senior
Oncology Social Worker, Cancer Therapy Centre - Liverpool Health
Service,
Locked Bag 7103, Liverpool
BC NSW 1871. Ph.
61 +2 9828 5224. 98283000 ask for Pager. #25558. E-mail. teresa.simpson@sswahs.nsw.gov.au
The
Prince of Wales
Hospital, brain and spinal tumour
support group, meetings held monthly, all welcome. Contact Alanah
Bailey (02)
93823802 or email: alanah.bailey@sesiahs.health.nsw.gov.au
Westmead. Message from Emma Everingham: I am one of
three co-ordinators of NOgIN, The Neuro- Oncology Information Network. We run a
support and information group for patients/carers from Westmead
Hospital and Westmead Private Hospital
who have had treatment for brain tumours. Please see our attached brochure for
contacts and details. Emma Everingham | Clinical
Nurse Consultant Neuroscience, East Wing | Westmead Private Hospital Cnr Mons
& Darcy Roads, Westmead NSW 2145, PO Box 161 Westmead NSW 2145 t: 02 8837
8926 02 8837 9000, page number 9 email:
everinghame@ ramsayhealth.com.au
Hunter Brain Tumour Network meets third Sunday afternoon of
each month
in central Newcastle.
Meetings are informal and patients, family members, carers and those
whose
lives have been impacted by a brain tumour are welcome. The interest of
health
professionals is appreciated in referring people. Please contact Kaye
Duffy at kduffy@hunterlink.net.au
or phone 0413 275
853 for more information.
ACT: ACT Brain
Tumour Network. Contact Susan Pitt (62470632)
Click here to return to
the main webpage for Brain Tumour Alliance Australia